ALS Links and Resources

The following organizations and ALS links may provide much useful information for people with ALS:

The ALS Association
This national non-profit organization is committed to research, patient support, information, advocacy and public awareness.

ALS Association chapters are grassroots organizations that carry out ALSA's mission and strategic goals at the community level. The chapter provides a wide range of services for people living with ALS.

If there is not a chapter in your area, information and referral services are provided through ALSA's National Office,
(800) 782-4747.
www.alsa.org

Project ALS
This organization provides funding for cutting edge research. It was founded by Jenifer Estess, whose beautiful book "Tales From The Bed" is available on their web site.
www.projectals.org

Les Turner ALS Foundation
Supports medical research and employs a full time genetic counselor to discuss the complex issues associated with risk assessment and genetic testing for ALS. Provides genetic counseling to families who may have the gene responsible to the familial form of ALS.
www.lesturnerals.org

Ride for Life
Ride for Life, Inc. is a not-for-profit corporation founded by ALS patients, caregivers and those who care about people living with ALS. Their mission is to raise public awareness, assist research in finding a cure and support ALS patients and their families. They are called "Ride for Life" because of their annual event in the spring in which ALS patients ride their wheelchairs from Manhhattan to Montauk to raise funds for a cure and create awareness of this horrible disease.

This organization has a wonderful section on stem cell therapy, with lots of first hand accounts of People with ALS receiving stem cell surgery in China.
www.rideforlife.com

Eric Edney's Web Site
Eric Edney, author of "Eric is Winning - Beating a Terminal Illness with Nutrition, Avoiding Toxins and Common Sense" gives regular updates on his condition and his regimens on this website.
www.ericiswinning.com

Dave Johnson's Web Site
Dave Johnson describes his web site as "ALS Therapy by a recovering patient who has nothing to sell".
http://alstherapy.info

Never Give Up 4 PALS
Raises money for ALSA by selling red wrist bands.
www.nevergiveup4pals.org

United Kingdom ALS Support
www.build-uk.net

Spanish ALS Association
www.advernet.es/adela

German ALS Support
www.als-site.de

Scandinavian ALS Web Site
www.sasdx.com

PLEASE NOTE: We do not have information on local ALS organizations in your area. Please refer to the ALS Association above.

Questions? Call Toll Free 877-562-6039 or 520-877-2637. Or email your questions by clicking here.